Team Young
Team Young
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From Team Young
We are fundraising for Pediatric Pain Warriors! This group has made a tremendous difference for us as Cam and Mary face daily pain and challenges due to EDS.
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Event Details
Location
Virtually, Middletown CT 06457
Date & Time
Saturday, October 31 2020
12:00 AM
About The Team
Mary and Cam both have hypermobile Ehlers Danlos syndrome (EDS) which causes chronic pain. We've said it over and over: kids and pain shouldn't be in the same sentence. Yet, this is their every day experience. But they don't let it define them! They work hard, physically and emotionally to overcome challenges that others their own age can't relate to.
A couple of years ago we discovered the Pediatric Pain Warriors program through US Pain. This program has added joy and confidence to our lives! Its introduces us to other families that understand exactly what it's like to walk in our shoes. Our kids can relax, being with others who truly "get it" and don't make them feel different or left out. We look forward to reuniting with our friends every year at the conferences. This year, we've really enjoyed the virtual conference.
It's time for us to give back to an organization that has given us so much! We've set the audacious goal of walking 1 mile 26 times for "Our Marathon." This is a huge goal since EDS pain often makes this nearly impossible but the kids have been diligently doing PT and working on stamina and they believe they can do it. So, please, encourage them by donating today.
More Info
Kids living with chronic pain conditions endure pain, fatigue, and are faced with overcoming obstacles every day. Simple tasks such as getting out of bed, showering, making it through an entire school day can all prove challenging. When they start each day they don’t know if they will be walking, rolling, or using crutches/canes to participate in these routine activities; but they do know they will do the best they can. Most people take for granted their ability to complete these daily activities. For our pain warriors it is truly like running a marathon!
The U.S. Pain Foundation is encouraging our pain warriors to get out and move. By setting My Marathon movement goals, ALL abilities can be included and personal goals can be achieved.
Because marathons are 26.2 miles, we are asking our pain warriors to do 26 movement activities. Whether they are participating in physical therapy, walking, swimming or attending a sport/exercise program, we challenge them to participate, to the best of their abilities, for 26 days. The possibilities are endless. Each child's chronic pain journey is different, making each child's My Marathon movement goal unique!
Funds raised for the Pediatric Pain Warrior Program, will help create forums and events including special retreats for our pediatric pain warriors and their families. The program provides opportunities to connect and find support as well as cultivate public awareness of chronic pain by sharing stories and information.
"Attending the Pediatric Pain Warrior retreats (San Antonio, Chicago and Virtual) has given us hope. It has allowed us to form connections with people who can empathize with our pain because they're going through the same thing. The program, and all it has to offer, has made us realize we are not alone." Reagan and Knox (pediatric pain warriors) Texas
"My favorite thing about being at the retreat in Orlando and Chicago was just being able to participate in activities surrounded by people (other kids) who understand why you might be walking one day and needing a wheelchair the next. They never question it." Cameron (pediatric pain warrior) Wisconsin
"My daughter and I are so grateful to have joined the Pediatric Pain Warriors virtual retreat this year. We have both learned so much from the webinars and have found support through all the different zoom calls they are offering. We both have made life long friends that are supportive and understanding with what we go through on a daily basis. We have finally found our "tribe"." Debbie (mother of a pediatric pain warrior) Florida
The My Marathon Fundraiser will kick-off Sept 1 in recognition of National Pain Awareness Month.
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Help Johanna raise $1,500 by making a donation.
Donors
Ryan Madden
Tammy Kosbab
Jason Young & Jun shan
John Schneck
Teresa & Rachid
Johanna Young
Chek Wong
Dana Scheele
Mary Beth Lewison
Darrin Wroblewski
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Please feel free to tell you own story here or just delete this sentence and use the message below.
Kids living with chronic pain conditions endure pain, fatigue, and are faced with overcoming obstacles every day. Simple tasks such as getting out of bed, showering, making it through an entire school day can all prove challenging. When they start each day they don’t know if they will be walking, rolling, or using crutches/canes to participate in these routine activities; but they do know they will do the best they can. Most people take for granted their ability to complete these daily activities. For our pain warriors it is truly like running a marathon!
The U.S. Pain Foundation is encouraging our pain warriors to get out and move. By setting My Marathon movement goals, ALL abilities can be included and personal goals can be achieved.
Because marathons are 26.2 miles, we are asking our pain warriors to do 26 movement activities such as 26 minutes of physical therapy for 26 days, walking/swimming what they are able for 26 days or attending a sport/exercise program for 26 days. The possibilities are endless. Each child's chronic pain journey is different, making each child's My Marathon movement goal unique!
Funds raised for the Pediatric Pain Warrior Program, will help create forums and events including special retreats for our pediatric pain warriors and their families. The program provides opportunities to connect and find support as well as cultivate public awareness of chronic pain by sharing stories and information.
"Attending the Pediatric Pain Warrior retreats (San Antonio, Chicago and Virtual) has given us hope. It has allowed us to form connections with people who can empathize with our pain because they're going through the same thing. The program and all it has to offer has made us realize we are not alone." Reagan and Knox (pediatric pain warriors) Texas
"My favorite thing about being at the retreat in Orlando and Chicago was just being able to participate in activities surrounded by people (other kids) who understand why you might be walking one day and needing a wheelchair the next. They never question it." Cameron (pediatric pain warrior) Wisconsin
"My daughter and I are so grateful to have joined the Pediatric Pain Warriors virtual retreat this year. We have both learned so much from the webinars and have found support through all the different zoom calls they are offering. We both have made life long friends that are supportive and understanding with what we go through on a daily basis. We have finally found our "tribe"." Debbie (mother of a pediatric pain warrior) Florida
The My Marathon Fundraiser will kick-off Sept 1 in recognition of National Pain Awareness Month.