U.S. Pain Foundation fundraising for My Marathon for Pediatric Pain Warriors
U.S. Pain Foundation fundraising for My Marathon for Pediatric Pain Warriors
From U.S. Pain Foundation
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Event Details
Location
Virtually, Middletown CT 06457
Date & Time
Saturday, October 31 2020
12:00 AM
More Info
Children should never feel alone. Their childhood should be filled with friends and serendipitous adventure. But for kids like Reagan and Knox, who live with chronic pain, they are often isolated and their childhood is filled with doctors and appointments instead. Despite experiencing disabling pain, Reagan and Knox strive each day to do their best. Pain has not hindered their dreams and aspirations; it has simply put obstacles in their path!
But thanks to the Pediatric Pain Warrior program, Reagan and Knox no longer feel so alone.
“Attending the Pediatric Pain Warrior retreats (San Antonio, Chicago and Virtual) has given us hope. It has allowed us to form connections with people who can empathize with our pain because they're going through the same thing. The program, and all it has to offer, has made us realize we are not alone."
For the first time ever, through the PPW program, we have met families with the same rare diagnoses as we have. These families come from all of the US and Canada and shared one thing in common- our homes are impacted by children who live with chronic pain. We can not put into words what it meant to meet these families, who are now our friends; to share our stories, give our support and to empower one another was simply priceless.
For our My Marathon, we commit to engage in physical activities for 26 days in September.
Please consider making a donation to our team- nothing is too big or too small- and know you are making a contribution that will be life-changing for someone- a child, a sibling, a parent who knows all too well what it is like to live with chronic pain.
Remember- "Little by little, little makes a lot."- Tanzanian Proverb
Kids living with chronic pain conditions endure pain, fatigue, and are faced with overcoming obstacles every day. Simple tasks such as getting out of bed, showering, making it through an entire school day can all prove challenging. When they start each day they don’t know if they will be walking, rolling, or using crutches/canes to participate in these routine activities; but they do know they will do the best they can. Most people take for granted their ability to complete these daily activities. For our pain warriors it is truly like running a marathon!
The U.S. Pain Foundation is encouraging our pain warriors to get out and move. By setting My Marathon movement goals, ALL abilities can be included and personal goals can be achieved.
Because marathons are 26.2 miles, we are asking our pain warriors to do 26 movement activities. Whether they are participating in physical therapy, walking, swimming or attending a sport/exercise program, we challenge them to participate, to the best of their abilities, for 26 days. The possibilities are endless. Each child's chronic pain journey is different, making each child's My Marathon movement goal unique!
Funds raised for the Pediatric Pain Warrior Program, will help create forums and events including special retreats for our pediatric pain warriors and their families. The program provides opportunities to connect and find support as well as cultivate public awareness of chronic pain by sharing stories and information.
"Attending the Pediatric Pain Warrior retreats (San Antonio, Chicago and Virtual) has given us hope. It has allowed us to form connections with people who can empathize with our pain because they're going through the same thing. The program, and all it has to offer, has made us realize we are not alone." Reagan and Knox (pediatric pain warriors) Texas
"My favorite thing about being at the retreat in Orlando and Chicago was just being able to participate in activities surrounded by people (other kids) who understand why you might be walking one day and needing a wheelchair the next. They never question it." Cameron (pediatric pain warrior) Wisconsin
"My daughter and I are so grateful to have joined the Pediatric Pain Warriors virtual retreat this year. We have both learned so much from the webinars and have found support through all the different zoom calls they are offering. We both have made life long friends that are supportive and understanding with what we go through on a daily basis. We have finally found our "tribe"." Debbie (mother of a pediatric pain warrior) Florida
The My Marathon Fundraiser will kick-off Sept 1 in recognition of National Pain Awareness Month.
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Kids living with chronic pain conditions endure pain, fatigue, and are faced with overcoming obstacles every day. Simple tasks such as getting out of bed, showering, making it through an entire school day can all prove challenging. When they start each day they don’t know if they will be walking, rolling, or using crutches/canes to participate in these routine activities; but they do know they will do the best they can. Most people take for granted their ability to complete these daily activities. For our pain warriors it is truly like running a marathon!
The U.S. Pain Foundation is encouraging our pain warriors to get out and move. By setting My Marathon movement goals, ALL abilities can be included and personal goals can be achieved.
Because marathons are 26.2 miles, we are asking our pain warriors to do 26 movement activities such as 26 minutes of physical therapy for 26 days, walking/swimming what they are able for 26 days or attending a sport/exercise program for 26 days. The possibilities are endless. Each child's chronic pain journey is different, making each child's My Marathon movement goal unique!
Funds raised for the Pediatric Pain Warrior Program, will help create forums and events including special retreats for our pediatric pain warriors and their families. The program provides opportunities to connect and find support as well as cultivate public awareness of chronic pain by sharing stories and information.
"Attending the Pediatric Pain Warrior retreats (San Antonio, Chicago and Virtual) has given us hope. It has allowed us to form connections with people who can empathize with our pain because they're going through the same thing. The program and all it has to offer has made us realize we are not alone." Reagan and Knox (pediatric pain warriors) Texas
"My favorite thing about being at the retreat in Orlando and Chicago was just being able to participate in activities surrounded by people (other kids) who understand why you might be walking one day and needing a wheelchair the next. They never question it." Cameron (pediatric pain warrior) Wisconsin
"My daughter and I are so grateful to have joined the Pediatric Pain Warriors virtual retreat this year. We have both learned so much from the webinars and have found support through all the different zoom calls they are offering. We both have made life long friends that are supportive and understanding with what we go through on a daily basis. We have finally found our "tribe"." Debbie (mother of a pediatric pain warrior) Florida
The My Marathon Fundraiser will kick-off Sept 1 in recognition of National Pain Awareness Month.